Until there’s a cure…hope and healing every day.

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            Helpful Links


Website Resources

Alzheimer’s Association

www.alz.org

Alzheimer's Resources

www.alzheimers.net  

American Parkinson Disease Association:

Provides outreach, support and education in the Western United States. www.apdaparkinson.org

Brain Talk Communities:

Neurology Support Groups (series of forums)
www.braintalkcommunities.org/

Brian Grant Foundation

Established by Brian Grant, 12 year veteran of the NBA, after he was diagnosed with young-onset Parkinson's at the age of 36.  The Foundation focuses on promoting wellness, exercise and nutrition to the Parkinson's community. www.briangrant.org 

California Department of Motor Vehicles Senior Guide for Safe Driving:

Includes a Driver Skills Self-Assessment Questionnaire
DMV Senior Guide to Safe Driving

Eddie Balklesteros, Senior Driver Ombudsman

916-657-6464

California Phones for the Disabled

California Phones from the California Telephone Access Program makes it easier for everyone to stay connected. They offer free specialized phones that make it easier to hear, dial, and call. Over half a million Californians are already enjoying California Phones.  CLICK HERE

California Resource Centers:

Click here for information

Coalition for Compassionate Care of California

CLICK HERE

The Conversation Project - End of Life Issues:

CLICK HERE for important information

CLICK HERE for a video

CurePSP
Society for Progressive Supernuclear Palsy
www.curepsp.org

Davis Phinney Foundation

http://www.davisphinneyfoundation.org

Lewy Body Dementia Association Inc. www.lewybodydementia.org

LIFE CARE PLANNING
Kaiser has produced a resource - open to anyone - for advance care planning.  Kaiser calls this "life care planning," and has created a website devoted to reflecting on your values, selecting a health care agent, expressing your decisions, and sharing your wishes. CLICK HERE for a link to the website

LSVT Foundation
LSVT Global, Inc. pioneered the Lee Silverman Voice Treatments (LSVT LOUD® ; andLSVT BIG® ), innovative and clinically-proven methods for improving communication and movement in individuals with Parkinson disease with application to other neurological conditions. www.lsvtglobal.com

Michael J Fox Foundation
for Parkinson's Research

www.michaeljfox.org

MOVE IT!
An Exercise and Movement Guide for Parkinson's Disease.  www.parkinsonsmoveit.com

Movement Disorder Society
An international professional society invested in the research and care of patients with Movement Disorders, including Parkinson's disease.
www.movementdisorders.org/disorders/parkinson.php

National Parkinson Foundation
An important international organization dedicated to research, education and support for the Parkinson's community.  www.parkinson.org

Northwest Parkinson's Foundation
A dynamic Parkinson's support organization serving the greater northwest.  www.nwpf.org

Neurology Now Magazine
A new bimonthly magazine for neurology patients, their families, and caregivers, the official publication of the American Academy of Neurology (AAN). The magazine provides accurate and important new information about advances in the diagnosis and treatment of neurological diseases, including expert advice about wellness and disease prevention, new medications and therapies, and strategies for coping with neurological disorders. Neurology Now provides balanced coverage of therapies based on the latest developments in laboratory research and clinical trials.. A subscription is available free to patients. Visit the website to subscribe. www.neurologynow.com

Parkinson's Action Network
Parkinson’s Hope Digest
Parkinson’s disease articles, updates, research reviews, monthly newsletters, and patient stories. www.parkinsonsaction.org 

Partnership for Prescription Assistance Program
The mission of the Partnership for Prescription Assistance Program is to increase awareness of patient assistance programs and boost enrollment of those who are eligible. The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 180 programs offered by pharmaceutical companies.
Website: www.pparx.org/Intro.php
Phone: 1-888-4PPA-NOW (1-888-477-2669)

Sacramento County
This comprehensive, internet-based resource is for the elderly and people with disabilities, as well as their caregivers and service providers. www.sacramento.networkofcare.org

Shy Drager MSA Chat group
health.groups.yahoo.com/group/shydrager

Parkinson's Disease Society of UK
www.parkinsons.org.uk

WebMedHealth
Covers many health issues.
my.webmd.com/webmd_today

Worldwide Education and Awareness
for Movement Disorders

www.movementdisorders.org

Resources for Prescription Assistance

HollyRod Foundation for Help and Hope:
HollyRod Compassionate Care enhances the quality of life for people with Parkinson's disease. This program provides care, services, and resource information to those who have little or no healthcare insurance and limited financial resources. Services provided through HollyRod Compassionate Care may include: Assistance obtaining medications; Home safety assessments; Assistance obtaining treatments and therapies not covered by insurance; Assistance obtaining adaptive equipment; Counseling services; Other services and care as needed. www.hollyrod.org. HollyRod Foundation, 9250 Wilshire Blvd., Suite LL15, Beverly Hills, CA 90212. Phone: 1-866-HOLLYROD (866.465.5976) or 310-385-1590. Fax: 310.385.1599. e-mail: hello@hollyrod.org

MEDLine plus Health Information, a service of the National Library of Medicine. A site that lists current trials for Parkinson's Disease and how you can enroll in them. www.nlm.nih.gov/medlineplus

Multiple System Atrophy News
www.multiplesystematrophy.org

MSA Support Group
Shy-Drager Yahoo Group

National Institutes of Health
www.cc.nih.gov

Needy Meds
The mission of NeedyMeds has been to make information about assistance programs available to low-income patients and their advocates at no cost. Databases such as Patient Assistance Programs and Disease-Based Assistance, government programs and other types of assistance programs are the crux of the free information we offer online. Available via internet (website) only, no phone service.
www.needymeds.org

Parkinson's Disease Foundation
The Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, education and public advocacy
Click here for more information.

Parkinson's Institute in Sunnyvale
http://www.thepi.org/

PD Expert Briefings Online Educational Events provided by Parkinson’s Disease Foundation

Click for more information

Partners in Parkinson's
A recently launched program through the Michael J. Fox Foundation allowing information to be customized for you location. 

www.partnersinparkinsons.org

Pfizer Helpful Answers
Pfizer Helpful Answers offers patient assistance programs to people without prescription coverage. These programs provide: Savings on Pfizer medicines, regardless of age or income; or free Pfizer medicines for people with limited incomes who qualify.
www.pfizerhelpfulanswers.com
Phone: 1-866-776-3700

RxAssist Rx
Assist offers a comprehensive database of pharmaceutical companies' patient assistance programs which provide free medications to people who cannot afford to buy their medicine. RxAssist also provides practical tools, news and articles so that health care professionals and patients can find the information that they need. All in one place. www.rxassist.org. Phone: 401-729-3284
Fax: 401-729-2955. info@rxassist.org

SHAKYPAWSGRAMPA
Shaky Paws Grampa (SPG) is Kirk Hall, a nationally and internationally recognized Parkinson's Disease authori, speaker and advocate. His books are on the recommended reading lists for the Parkinson Disease Foundation (NPF), Michael J. Fox Foundation (MJFF), Lewy Body Dementia Association (LBDA), and Viartis. His blog contains 90+ articles and has been visited by readers from 60+ countries around the world. www.shakypawsgrampa.com

Social Security Disability
The Social Security and Disability Resource Center website provides answers to questions concerning how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants filing for either SSD (social security disability) or SSI (supplemental security income) benefits. www.ssdrc.com

U. of California San Francisco
Parkinsons Disease Clinic and Research Center

World Parkinson Congress
The World Parkinson Congress Inc. is a nonprofit organization dedicated to providing an international forum for the latest scientific discoveries, medical practices and caregiver initiatives related to Parkinson's disease. By bringing physicians, scientists, allied health professionals, caregivers and people with Parkinson's disease together, we hope to create a worldwide dialogue that will help expedite the discovery of a cure and best treatment practices for this devastating disease. www.worldpdcongress.org/

 

 


Call Us: 916-357-6641           Email Us: panc@parkinsonsacramento.org

Mailing Address:   1750 Prairie City Rd., #130-220, Folsom, CA  95630